• Schizoaffective Disorder,  Schizophrenia

    5 Things That Help Me When I’m Experiencing Psychosis

    Schizoaffective disorder is a rollercoaster. An illness on the schizophrenia spectrum, it is a cocktail of mood symptoms and psychosis that’s well shaken and then lit on fire. Despite taking medications and being in therapy, I do still experience symptoms sometimes, including symptoms of psychosis like hallucinations. And when I’m fighting my way through a sea of psychosis, I don’t expect people to know what to do. For a very long time, I didn’t know what to do either. I spent years bracing myself through my symptoms as I waited for medication adjustments to take effect. But with every episode of psychosis that I’ve endured, I’ve learned new things about…

  • Recovery,  Schizoaffective Disorder,  Schizophrenia

    When Words Escape Me – Schizoaffective Disorder And Written Communication

    TW: Mention of suicidal thoughts If you knew me in high school, you would probably have seen me scribbling in a journal or adding another freewrite filled with metaphors to my binder. My computer is full of short notes, poems, essays, and stories. But at a certain point, they stop. The scrawled pages of my journal go blank. The files on my computer run out. With its onset, schizoaffective disorder stole the words from my mind. Words were more than communication or a hobby for me. Words were how I sorted out my thoughts and emotions and how I figured out who I was and who I wanted to be.…

  • Advocacy,  Recovery,  Schizoaffective Disorder,  Schizophrenia

    Invalidation – Silent and Destructive

    Invalidation is a silent pandemic. People with conditions, illnesses, and disabilities of all kinds are subject to rampant invalidation, sometimes from all sides. In many cases, even the people who do or claim to care about an individual can invalidate them regularly. And they often don’t realize they are doing it. But we don’t talk about it. Those who feel invalidated often don’t feel comfortable or safe speaking up. Some believe the invalidating statements to be true. But when someone does bring it up to the invalidators, it doesn’t always go well. Over the years I have faced invalidation in many forms and from many people, but the most invalidation…

  • Hallucinations,  Schizoaffective Disorder,  Schizophrenia

    How She Helped Me – Small Things, Big Impact

    To the coworker who helped me when I had a hallucination at work, thank you.  When I told you I had a weird question and I didn’t know how to ask, you gave me your full attention. No discomfort, no judgement, you listened. You listened to me say that I had been sitting at my desk working and heard the sound of scratching from the inside of the server room door and I didn’t know if it was real or all in my head. Only a select few people in the office know that I have schizoaffective disorder, including you. But I had never approached anyone in the office with…

  • Advocacy,  Schizoaffective Disorder,  Schizophrenia

    To my friend living with psychosis,

    Hey, you – you transitioning out of that facility; you sitting at home; you still figuring out your next move; and you who feels like there’s no hope and no one understands. My friend, this letter is for you. My name is Katie, and though I may not have been through the exact same things you have, I get it.  I’ve been diagnosed with schizoaffective disorder since I was 17. I’ve taken handfuls of meds, done countless hours of therapy, and lost parts of my life to my disorder. And I’m here to tell you that there is hope for things to get better. Life might feel impossible right now.…

  • Schizoaffective Disorder,  Schizophrenia

    Alone With Schizoaffective Disorder – My Fears, Experiences, and How I Cope

    As I closed the door, I could feel the flutter in my stomach. The timer has started. I am alone. With my cat and my dog, I guess I’m not entirely alone, but it’s not the same as having a person with me. There’s frustration – though this month will find me alone more often than not, it’s just a few days at a time. I’ve lived alone for as much as two years at a time. Yet, despite my frustration and against reason, there is a part of me that is afraid. It’s not a fear of others, but rather, a fear of myself. Being alone is one thing,…

  • Schizoaffective Disorder,  Schizophrenia

    How My Brain Works After Schizoaffective Disorder

    At 17, I was a problem solver. I was an academic thinker who thrived on logic puzzles and complex literature. Creativity was a second language – drawing, acting, photography, and stream-of-consciousness free writes wrapped up in metaphors. Whether or not I was any good at them didn’t matter; the ideas and motivation just flowed naturally. Outside of undiagnosed depression and obsessive-compulsive disorder (OCD), my brain was efficient and extremely sharp. Each of my mental illnesses has had its impact on my mental functioning, but with the onset of schizoaffective disorder, things took a sharp turn. Though my passions and other areas of interest remain the same, my brain works differently…

  • Advocacy,  Schizoaffective Disorder,  Schizophrenia

    5 Of The Best Things Anyone Has Ever Done For Me And My Schizoaffective Disorder

    It’s normal to feel lost when it comes to how to help someone with schizoaffective disorder or schizophrenia. Even if you’re the person living with it, you may not always know what to ask for or even how to ask. But that’s okay. Unless you’ve been through this before, there’s no reason you would know what to do. And, while those of us living with psychosis may have some of the same or similar symptoms, these illnesses are highly personal and what works for one person may not work for another. But to help you come up with things that will help you or your loved one, in no particular…

  • Anxiety,  Depression,  Obsessive Compulsive Disorder,  Perfectionism,  PTSD,  Recovery,  Schizoaffective Disorder

    The Let Down – A dangerous place for mental illness

    At the end of a stressful event or series of events, whether good or bad, comes the let down. I’m the type of person who will put my head down and try (not always successfully) to power through a situation. I give it my all, draining myself of energy, emotion, and strength. But once I’ve given every ounce of my mind, body, and soul, I feel like I have nothing left. The emptiness aches so much that it welcomes all of the thoughts and feelings I fight to keep at bay. The let down is a dangerous place for me. When there is nothing left of a situation to push…