Advocacy
Articles that relate to mental health advocacy in any form
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Society Shouldn’t Tell Me How To Experience My Mental Illness
Society tells us many things, but, when it comes to how people experience mental illnesses, it's time for society to stop and listen.
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Dear Mental Health Professionals – You Need People With Lived Experience On Your Team. Here’s Why.
Dear researchers, clinicians, and other professionals who work with people who experience psychosis, My name is Katie and I have been living with schizoaffective disorder since 2008. And you need people like me. I don’t mean as patients or research subjects or consumers of any kind. I mean as a fellow professional. Because my lived experience, and that of others, can change the way we look at and treat those living with psychosis. I can give you insights you can’t find anywhere but the minds of those living with psychosis. I’ve been a psychosis advocate for years. I’ve worked independently, as an ambassador for NAMI Chicago, and, most recently, as…
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What I didn’t have to give up because of schizoaffective disorder
It’s all gone. That’s what I thought when I received my schizophrenia diagnosis, later updated to schizoaffective disorder. In my head, I watched everything I’d wanted and planned go up in flames. At first, I was resigned to it. But, over a year later, mental health advocacy caught my eye and I took up the chant that a diagnosis on the schizophrenia spectrum is not a death sentence. And, though I stand by that, I think mental health advocacy, at least when it comes to severe mental illness, misses some things. This illness isn’t my fault, but I still felt like, by having it, I had to give certain things…
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Invalidation – Silent and Destructive
Invalidation is a silent pandemic. People with conditions, illnesses, and disabilities of all kinds are subject to rampant invalidation, sometimes from all sides. In many cases, even the people who do or claim to care about an individual can invalidate them regularly. And they often don’t realize they are doing it. But we don’t talk about it. Those who feel invalidated often don’t feel comfortable or safe speaking up. Some believe the invalidating statements to be true. But when someone does bring it up to the invalidators, it doesn’t always go well. Over the years I have faced invalidation in many forms and from many people, but the most invalidation…
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A Stereotype, Schizophrenia, and How I Had It All Wrong
Before I was diagnosed with schizophrenia, I believed some of the stereotype. Here's what the stereotype got wrong and how it impacted me.
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A Young Adult gets a Schizophrenia Diagnosis- My Experience and How to Change It
Imagine, for a moment, a young adult, sitting on the couch in a psychiatrist’s office, shifting anxiously as they wait to hear the answer to their question. The doctor sits in her chair, red nails pressed tip to tip as she puts her hands together. Hesitantly, she gives the young adult the answer they dreaded – “It’s looking to be schizophrenia.” In your mind, who is this young adult? Yourself? Your child or sibling? Or perhaps a stranger? How did you picture them reacting to this news? My guess is, not well. And that would not be surprising. When I received my initial schizophrenia diagnosis, I thought my life was…
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To my friend living with psychosis,
Hey, you – you transitioning out of that facility; you sitting at home; you still figuring out your next move; and you who feels like there’s no hope and no one understands. My friend, this letter is for you. My name is Katie, and though I may not have been through the exact same things you have, I get it. I’ve been diagnosed with schizoaffective disorder since I was 17. I’ve taken handfuls of meds, done countless hours of therapy, and lost parts of my life to my disorder. And I’m here to tell you that there is hope for things to get better. Life might feel impossible right now.…
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5 Of The Best Things Anyone Has Ever Done For Me And My Schizoaffective Disorder
It’s normal to feel lost when it comes to how to help someone with schizoaffective disorder or schizophrenia. Even if you’re the person living with it, you may not always know what to ask for or even how to ask. But that’s okay. Unless you’ve been through this before, there’s no reason you would know what to do. And, while those of us living with psychosis may have some of the same or similar symptoms, these illnesses are highly personal and what works for one person may not work for another. But to help you come up with things that will help you or your loved one, in no particular…
- Advocacy, Anxiety, Depression, Eating Disorders, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Why Mental Health Education Needs to Begin Before a Career
When I started speaking publicly about schizoaffective disorder in college, it was an education on, “look what people like me can achieve despite all of this” Now, when I speak for classes and community presentations, it’s, “look what it’s really like to live with this” And when I speak for law enforcement and correctional officers, it’s, “look at how I go through all of this, but I’m still just like you.” Same life story, different goal. I rewrote my talk again in anticipation of speaking to the Chicago Police Department for the second time. I began speaking publicly as a junior in college and was both terrified and excited at…
- Advocacy, Anxiety, Depression, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Help, Hypocrisy, and What it Took for Me To Ask
I shocked my psychiatrist recently. I have never seen her more surprised than when I asked, “do you think a third session every week would be helpful?” It took her a moment to process. “yes,” she said, “I think it would.” Today she explained her surprise. In the nearly 8 years she’s been working with me, I’ve done just about everything to avoid asking for help. And suddenly, I am determined to get it. Let me give you some background My childhood and teen years were spent trying to convince myself that my obsessive-compulsive disorder was quirkiness and that I was being overdramatic by thinking I was suffering from depression.…
