• Advocacy,  Recovery,  Schizoaffective Disorder,  Schizophrenia

    Invalidation – Silent and Destructive

    Invalidation is a silent pandemic. People with conditions, illnesses, and disabilities of all kinds are subject to rampant invalidation, sometimes from all sides. In many cases, even the people who do or claim to care about an individual can invalidate them regularly. And they often don’t realize they are doing it. But we don’t talk about it. Those who feel invalidated often don’t feel comfortable or safe speaking up. Some believe the invalidating statements to be true. But when someone does bring it up to the invalidators, it doesn’t always go well. Over the years I have faced invalidation in many forms and from many people, but the most invalidation…

  • Advocacy,  Schizoaffective Disorder,  Schizophrenia

    A Young Adult gets a Schizophrenia Diagnosis- My Experience and How to Change It

    Imagine, for a moment, a young adult, sitting on the couch in a psychiatrist’s office, shifting anxiously as they wait to hear the answer to their question. The doctor sits in her chair, red nails pressed tip to tip as she puts her hands together. Hesitantly, she gives the young adult the answer they dreaded – “It’s looking to be schizophrenia.”  In your mind, who is this young adult? Yourself? Your child or sibling? Or perhaps a stranger? How did you picture them reacting to this news? My guess is, not well. And that would not be surprising.  When I received my initial schizophrenia diagnosis, I thought my life was…

  • Advocacy,  Anxiety,  Depression,  Obsessive Compulsive Disorder,  PTSD,  Recovery,  Schizoaffective Disorder,  Schizophrenia

    Help, Hypocrisy, and What it Took for Me To Ask

    I shocked my psychiatrist recently. I have never seen her more surprised than when I asked, “do you think a third session every week would be helpful?” It took her a moment to process. “yes,” she said, “I think it would.” Today she explained her surprise. In the nearly 8 years she’s been working with me, I’ve done just about everything to avoid asking for help. And suddenly, I am determined to get it. Let me give you some background My childhood and teen years were spent trying to convince myself that my obsessive-compulsive disorder was quirkiness and that I was being overdramatic by thinking I was suffering from depression.…

  • Advocacy,  Disorganized symptoms,  Hallucinations,  Medication,  Recovery,  Schizoaffective Disorder,  Schizophrenia

    On Speaking Up About Symptoms

    We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…

  • Hallucinations,  Recovery,  Schizoaffective Disorder

    Living with the Pieces of My Shattered Mind

    The shadows felt alive. Dark and sharply defined, I could feel them breathe as we walked our dog in the dark evening. The shadows were nonthreatening, but the longer this internal war goes on, the more my world seems to come alive. It began with voices in the distance – a scream, whispers, conversation far off in the distance, always too far to be heard clearly. We turned them up and down in therapy, inspecting from all angles. But the only thing that came of our initial investigation was that I felt that their conversation had something to do with me. At some point in my past, my mind fractured…