- Advocacy, Anxiety, Cognitive Symptoms, Depression, Medication, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
A year in my life with mental illness – 2020
2020 came at us with teeth. But as we rapidly approach the end of the year, which is also my 30th birthday, I’m beginning to reflect on this past year. For the United States and the world as a whole, it’s been a tumultuous year full of some high points, but many lows. Personally, there have been some bold highlights, but also deep lows. My mental health is always something of a struggle, but I was unprepared for what this year would bring. Things don’t always work out like you expect. This year started with a job change that I thought was going to be perfect. And while there have…
- Anxiety, Depression, Eating Disorders, Hallucinations, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Do you get used to having a mental illness?
“I still get nightmares. In fact I get them so often I should be used to them by now. I’m not. No one ever really gets used to nightmares.” – Mark Z. Danielewski, House of Leaves Do you ever get used to having a mental illness? For some, mental illness can be treated and resolved. For others, it comes and goes. And for the rest of us, it’s life long and it’s just a matter of does it get worse, better, or remain the same. The course is determined by numerous factors like genes, trauma, and whether or not treatment works. The outcome is as unique and individual as we…
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Schizoaffective disorder – Would you take it all back if you could?
At this point, I can’t imagine what life would be like without schizoaffective disorder. What is it like to not take medication? How does it feel to have your thoughts mostly organized? What does it feel like to live without cognitive impairment? And what is life like when you’re struggles aren’t projected as something you experience that no one else perceives? Would my life be better without this disease? Despite my ability to function highly, schizoaffective disorder has caused my life to deviate far away from what most others experience. But how has it really impacted me? It’s been my downfall and silent disaster. It’s caused me agony, left me…
- A Day in the Life, Hallucinations, Obsessive Compulsive Disorder, Schizoaffective Disorder, Schizophrenia
A Day in My Life with Schizoaffective disorder – Moving Day
It’s moving day – well, day 2. We spent the night in our new apartment. It’s still skeletal when it comes to furnishings. Bags and boxes litter the rooms, stacked on the furniture and the floor. Despite all of that, I already feel at home. I lean towards the mirror as I put on my makeup. It might seem strange to some that I would wear makeup when I’ll be spending my day lifting and carting around boxes, but, for me, makeup is a form of self-care. I don’t think I look awful without it, but I feel more secure when I’ve spent time taking care of myself. It’s not…
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A letter to myself on the day of my diagnosis
8/5/2020 I know your mind is spinning right now. It’s August 5, 2008 and the words, “it’s looking to be schizophrenia,” are turning over and over in your head. You won’t ever forget the tone in her voice when she said it or her red nails. This day feels like the end of everything you’ve ever known, but it’s actually just the beginning of something entirely new. Your diagnosis will ultimately be updated to schizoaffective disorder, and you will struggle at first – with understanding your disorder, with the symptoms, the medication, and also the constant anxiety of being found out. But contrary to what you believe, those close to you will…
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A Day in My Life With Schizoaffective Disorder – When Symptoms Flare
Mental illnesses affect everyone differently. When I experience symptoms, to outsiders it may look like nothing is wrong. Here’s a glimpse behind the curtain of what a recent flare up was like for me. I pushed my post-traumatic stress disorder yesterday. I went to a place that I usually avoid. I’m proud of myself for that, but I’m paying a price. I had flashbacks that evening, and symptoms of psychosis crept in, the tide rising on me today. I take my time getting ready this morning. In general, when I’m stressed or anxious, I feel better if I’ve put effort into my appearance; it’s a form of self-care for me.…
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Suppressed Feelings and Psychosis
My doctor once told me that I experience my feelings visually. By this, she meant the visual hallucinations I was experiencing at the time were manifestations of the feelings that I was either suppressing or struggling to resolve. But it’s not just visual hallucinations. For several weeks I’ve been experiencing recurring auditory hallucinations. During therapy my doctor again pointed out that these hallucinations are my feelings come to life. It’s not always obvious what they mean though. And there are some for which I have no explanation. Or maybe there’s an explanation and I just have yet to find it. There are others with psychosis who use the meanings behind…
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The Trauma of Experiencing Mental Illness
Trauma is often a trigger for mental illness, but experiences had due to mental illness can also be traumatic themselves. I’ve had near death or serious injury experiences. I’ve been threatened, manipulated, and emotionally abused by an ex-boyfriend. I’m a rape survivor with post-traumatic stress disorder (PTSD). While my PTSD is triggered by things that remind me of my traumas, I’ve also discovered that I have a similar response to fears about experiencing symptoms and actions related to my schizoaffective disorder. For much of my life, I have battled depression At certain points in time, beginning at a very early age, I would think about suicide. Sometimes it was just…
- Adapting to life with schizoaffective disorder, Cognitive Symptoms, Disorganized symptoms, Hallucinations, Negative Symptoms, Recovery, Schizoaffective Disorder, Schizophrenia
Adapting to life with schizoaffective disorder (part 3) – symptoms
I didn’t know what to expect. Deep down I had suspected that it was schizophrenia, but getting confirmation from my doctor made it real. I was scared. None of the stories I knew about schizophrenia ended with someone being symptom-free. I sat in the car after my doctor’s appointment with my head spinning. Were the hallucinations going to get worse? Was I going to become delusional? Would I largely lose touch with reality? At that moment, I decided that that was not going to happen to me. It was more denial than anything else, but I had my mind set on it. I was not going to lose my life…
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Schizophrenia – Taking the power from the word
For a very long time, I lived in a cloud of shame and fear brought on by my diagnosis of schizoaffective disorder. I made my parents promise not to share it with my extended family. For a bit, I even kept my diagnosis from my brother, who was away at college. By the end of the first year with my disorder, less than 20 people knew, including my parents and doctors. I was so afraid of the power of the word schizophrenia. Fighting the fear I was afraid that the word alone would make people see me in a different light. Could it wash away years of friendship? What did…