Recovery
Articles that relate to my recovery and recovery from mental illness in general
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When Words Escape Me – Schizoaffective Disorder And Written Communication
TW: Mention of suicidal thoughts If you knew me in high school, you would probably have seen me scribbling in a journal or adding another freewrite filled with metaphors to my binder. My computer is full of short notes, poems, essays, and stories. But at a certain point, they stop. The scrawled pages of my journal go blank. The files on my computer run out. With its onset, schizoaffective disorder stole the words from my mind. Words were more than communication or a hobby for me. Words were how I sorted out my thoughts and emotions and how I figured out who I was and who I wanted to be.…
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Through A Different Lens – How A Person’s Diagnosis Can Distort Our View
I remember sitting in the car thinking, “things are never going to be the same. I will never be capable of the things I was capable of before.” Twenty minutes earlier, I had been sitting on the couch in my psychiatric nurse practitioner’s office hearing the word “schizophrenia.” After that moment, I never saw myself the same. And the longer I live with what is now diagnosed as schizoaffective disorder, the more I see how this shift in view is not unique to me or even only those living with mental illnesses. Parents, doctors – anyone really, can easily slip into viewing someone through a different lens once they receive…
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Dear Mental Health Professionals – You Need People With Lived Experience On Your Team. Here’s Why.
Dear researchers, clinicians, and other professionals who work with people who experience psychosis, My name is Katie and I have been living with schizoaffective disorder since 2008. And you need people like me. I don’t mean as patients or research subjects or consumers of any kind. I mean as a fellow professional. Because my lived experience, and that of others, can change the way we look at and treat those living with psychosis. I can give you insights you can’t find anywhere but the minds of those living with psychosis. I’ve been a psychosis advocate for years. I’ve worked independently, as an ambassador for NAMI Chicago, and, most recently, as…
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What I didn’t have to give up because of schizoaffective disorder
It’s all gone. That’s what I thought when I received my schizophrenia diagnosis, later updated to schizoaffective disorder. In my head, I watched everything I’d wanted and planned go up in flames. At first, I was resigned to it. But, over a year later, mental health advocacy caught my eye and I took up the chant that a diagnosis on the schizophrenia spectrum is not a death sentence. And, though I stand by that, I think mental health advocacy, at least when it comes to severe mental illness, misses some things. This illness isn’t my fault, but I still felt like, by having it, I had to give certain things…
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Invalidation – Silent and Destructive
Invalidation is a silent pandemic. People with conditions, illnesses, and disabilities of all kinds are subject to rampant invalidation, sometimes from all sides. In many cases, even the people who do or claim to care about an individual can invalidate them regularly. And they often don’t realize they are doing it. But we don’t talk about it. Those who feel invalidated often don’t feel comfortable or safe speaking up. Some believe the invalidating statements to be true. But when someone does bring it up to the invalidators, it doesn’t always go well. Over the years I have faced invalidation in many forms and from many people, but the most invalidation…
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When You Can’t Trust Your Own Brain
Muddled feelings circle my head as I stare blankly at the computer screen at work. It feels like everyone is upset with me. Like all I do is annoy people and get in the way. But is that just my depression? I read anger on the face of a coworker. But is that just my brain malfunctioning? What was that noise? Was it real? Am I just reading into things too much? I know that reality can slip through my fingers. Even in small ways and without excessive stress, my mind can create thoughts, sensations, and experiences that are not real. How can I trust that my thoughts and responses…
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Dear Schizoaffective Disorder – Letters to My Illness
Dear schizoaffective disorder, You are the worst roommate I have ever had. You took up residency in my brain, but refuse to pay rent. I know there’s no evicting you. And I know you’ll probably never play by my rules, but we need to find a way to live together. Dear schizoaffective disorder, You’re a bully. You lie in wait until you see my edges fraying. Then you come at me, claws out. There is no valor in preying on the weak. And I can barely imagine the suffering of the people without effective treatment on whom you prey. Sometimes I fight back. But sometimes I don’t have the energy…
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If I had a second chance at my first year with schizoaffective disorder
Close your eyes for a moment. Think of a difficult time in your life. What do you feel? Do you feel like you did your best or do you have regrets? Or maybe a combination of both? If you had a second chance and could go back and change the decisions you made or the way you acted, would you? When my mind wanders back to my first year living with schizoaffective disorder, I think I did the best I thought I could. But I don’t think I made all the right choices. If I could go back to standing in 17-year-old me’s worn out converse shoes, there are some…
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Let’s skip to the part of my life inside schizoaffective disorder
Trigger Warning: Mention of self-harm and suicidal thoughts. Let’s skip to the part where we’re close friends – past the pleasantries and smiling faces. We’re in high school, sitting on the floor of my living room softly speaking about the realities of our lives. I would tell you about how I felt like I didn’t belong anywhere. And that I felt safest with horses and my closest friends, but that neither had any power over my desire to self-harm or the way my thoughts wandered around the idea of taking my life, dragging toes, but always leaving the door open. Let’s skip to the part when things first turned. At…
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I’m Fine – The Reasons I Resisted Inpatient Treatment
When I was diagnosed with depression and anxiety, I was in therapy and prescribed medication. I felt like it was my fault. But I was terrified of my suicidal thoughts and self harm, so I mechanically took my medication every night. As my symptoms grew and changed, my medications did as well. By the time I was diagnosed with schizophrenia, I was already on an antipsychotic and a mood stabilizer. I wasn’t sure if they would solve all my problems, but the mechanical motion continued, as did my heavy steps to the therapist’s door. Had I experienced hallucinations prior to starting this regimen, I don’t know if I would have…