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Dear Schizoaffective Disorder – Letters to My Illness
Dear schizoaffective disorder, You are the worst roommate I have ever had. You took up residency in my brain, but refuse to pay rent. I know there’s no evicting you. And I know you’ll probably never play by my rules, but we need to find a way to live together. Dear schizoaffective disorder, You’re a bully. You lie in wait until you see my edges fraying. Then you come at me, claws out. There is no valor in preying on the weak. And I can barely imagine the suffering of the people without effective treatment on whom you prey. Sometimes I fight back. But sometimes I don’t have the energy…
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If I had a second chance at my first year with schizoaffective disorder
Close your eyes for a moment. Think of a difficult time in your life. What do you feel? Do you feel like you did your best or do you have regrets? Or maybe a combination of both? If you had a second chance and could go back and change the decisions you made or the way you acted, would you? When my mind wanders back to my first year living with schizoaffective disorder, I think I did the best I thought I could. But I don’t think I made all the right choices. If I could go back to standing in 17-year-old me’s worn out converse shoes, there are some…
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Let’s skip to the part of my life inside schizoaffective disorder
Trigger Warning: Mention of self-harm and suicidal thoughts. Let’s skip to the part where we’re close friends – past the pleasantries and smiling faces. We’re in high school, sitting on the floor of my living room softly speaking about the realities of our lives. I would tell you about how I felt like I didn’t belong anywhere. And that I felt safest with horses and my closest friends, but that neither had any power over my desire to self-harm or the way my thoughts wandered around the idea of taking my life, dragging toes, but always leaving the door open. Let’s skip to the part when things first turned. At…
- Advocacy, Anxiety, Depression, Eating Disorders, Medication, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Why I share my story and how you can share your story too
The very first time I shared my story at a Crisis Intervention Training (CIT), a man waited quite a while to talk to me after we were done. The rest of the class had returned from their brief break to finish out the end of the last day of the training. He told me that his sister had been diagnosed with schizoaffective disorder. But he said he and his family didn’t really get it because she seemed fine. Now, he said, he understood. He told me he was going to go home and call his sister. Moments like these encapsulate why I share my story. By speaking to those with…
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Schizoaffective disorder – Would you take it all back if you could?
At this point, I can’t imagine what life would be like without schizoaffective disorder. What is it like to not take medication? How does it feel to have your thoughts mostly organized? What does it feel like to live without cognitive impairment? And what is life like when you’re struggles aren’t projected as something you experience that no one else perceives? Would my life be better without this disease? Despite my ability to function highly, schizoaffective disorder has caused my life to deviate far away from what most others experience. But how has it really impacted me? It’s been my downfall and silent disaster. It’s caused me agony, left me…