voices of lived experience Archives

Advocacy, Disorganized symptoms, Hallucinations, Medication, Recovery, Schizoaffective Disorder, Schizophrenia

On Speaking Up About Symptoms

January 2, 2021 / 0 Comments

We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…

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Katie

Hi, my name is Katie, and over the course of my life, I’ve struggled with mental illnesses like depression, obsessive compulsive disorder, post traumatic stress disorder, and schizoaffective disorder. My illnesses brought me fear, shame, and a profound feeling of isolation. Recovery wasn’t always easy, but, despite the obstacles, I’ve accomplished a great deal. I graduated from a highly ranked college, hold down jobs, have meaningful relationships, and now speak publicly about living with mental illness, primarily schizoaffective disorder. I created this blog to break down preconceived notions about mental illness, and to show you that, not only can you go on to have a fulfilling life after being diagnosed with a mental illness or brain disease, but also that everyone’s story is unique, and, even when you’re not like the others, you’re not alone. Whether you have a mental illness yourself or are looking to help or better support someone else, know that no matter what you’re going through, there is hope.