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The Role of Emotional Dysregulation in My Life with Schizoaffective Disorder
My emotions don’t make sense to me sometimes. They sound foreign – instructions for how to act and respond that are written in code. They build and crash down on me like a tidal wave. And someitmes I can’t even identify what they are. They warp and bend and dance until they all look the same to me, and I don’t like what I see. Even happiness and excitement can become overwhelming and trigger negative feelings or even symptoms for me until I want to scream. This emotional dysregulation has played a key part in my life with schizoaffective disorder, and, looking back, it’s been around long before my diagnosis.…
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A Young Adult gets a Schizophrenia Diagnosis- My Experience and How to Change It
Imagine, for a moment, a young adult, sitting on the couch in a psychiatrist’s office, shifting anxiously as they wait to hear the answer to their question. The doctor sits in her chair, red nails pressed tip to tip as she puts her hands together. Hesitantly, she gives the young adult the answer they dreaded – “It’s looking to be schizophrenia.” In your mind, who is this young adult? Yourself? Your child or sibling? Or perhaps a stranger? How did you picture them reacting to this news? My guess is, not well. And that would not be surprising. When I received my initial schizophrenia diagnosis, I thought my life was…
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I’m Fine – The Reasons I Resisted Inpatient Treatment
When I was diagnosed with depression and anxiety, I was in therapy and prescribed medication. I felt like it was my fault. But I was terrified of my suicidal thoughts and self harm, so I mechanically took my medication every night. As my symptoms grew and changed, my medications did as well. By the time I was diagnosed with schizophrenia, I was already on an antipsychotic and a mood stabilizer. I wasn’t sure if they would solve all my problems, but the mechanical motion continued, as did my heavy steps to the therapist’s door. Had I experienced hallucinations prior to starting this regimen, I don’t know if I would have…
- Advocacy, Anxiety, Depression, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
The Right Term – Sensitive, Supportive, and Entirely Personal
Trigger Warning: Talk of Rape/Sexual Assault and Suicide In our efforts to be respectful, caring, and politically correct, we sometimes miss our own biases creeping in, though in a different way. We forget that not everyone thinks the same way, whether you share diagnoses or experiences or not. And in the process, we may be hindering the recovery and growth of others. From organizations and media, we learn the “appropriate” terms and ways to talk to people. But have you ever stopped and wondered if that’s what the individuals want? Person-first vs. identity-first language I am a person with schizoaffective disorder. Advocacy told me that I am not a schizoaffective,…
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Introducing the Not Like The Others Shop!
Not a post, but an announcement! The Not Like The Others Shop is live! Check it out for apparel and home goods inspired by life with mental illness. By seeing both the strength and the lighter side of experiences like mine, we can open the door for conversation and help normalize mental illness! You can navigate to the shop using the menu bar above on this site or go directly to the shop on Etsy here. If you don’t see something that speaks to you, let me know! I’ve got new designs and new items in the works and I would love to hear what you would like to see! Let’s…
- Advocacy, Anxiety, Depression, Eating Disorders, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Accepting Mental Illness in Real Life
If someone having visible symptoms of a mental illness makes you uncomfortable, the solution is not for them to stop. Society needs to learn to be accepting of mental illness in more than just theory. And this doesn’t only hold true for mental health. People with illnesses and disabilities of all kinds face this kind of stigma. I’ve been on both sides. I remember sitting on the L train in Chicago one evening with a friend. Across the aisle, a gentleman who had been muttering to himself began to hit himself on his forehead repeatedly. It made me uncomfortable because I didn’t know how to respond. Do I intervene? Would…
- Advocacy, Disorganized symptoms, Hallucinations, Medication, Recovery, Schizoaffective Disorder, Schizophrenia
On Speaking Up About Symptoms
We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…
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Depression: silently coming apart at the seams
Trigger Warning: Mention of self-harm and suicidal ideation In high school, I reinvented myself. In junior high I hid my extreme shyness and inner turmoil behind an obsession with horses. But as I transitioned from junior high to high school, I decided that I didn’t want to be “that weird girl” anymore. I had been involved in theater since I was 12 and simply utilized what I had learned. I wasn’t confident, but I could fake it. I’ve always been timid, but I had wanted to be a leader. And I wasn’t happy, but I could pretend I was. The result was a new identity – a fearless leader, alternative…
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Why we can’t forget about people with schizophrenia
It’s exciting to see so many organizations and individuals coming out to support and shed light upon mental illness. Brave people are standing up and sharing their stories, something that can be very frightening to do. The fight against stigma is gaining support daily. But in our efforts to dispel the myths and stereotypes around mental illness, there are still diseases that are often overlooked or treated differently. When it comes to advocacy, we can’t forget diseases like schizophrenia and schizoaffective disorder. The fear of the word Even within the mental health community, there is a great deal of stigma around disorders involving symptoms of psychosis like schizophrenia. The words…
- A Day in the Life, Hallucinations, Obsessive Compulsive Disorder, Schizoaffective Disorder, Schizophrenia
A Day in My Life with Schizoaffective disorder – Moving Day
It’s moving day – well, day 2. We spent the night in our new apartment. It’s still skeletal when it comes to furnishings. Bags and boxes litter the rooms, stacked on the furniture and the floor. Despite all of that, I already feel at home. I lean towards the mirror as I put on my makeup. It might seem strange to some that I would wear makeup when I’ll be spending my day lifting and carting around boxes, but, for me, makeup is a form of self-care. I don’t think I look awful without it, but I feel more secure when I’ve spent time taking care of myself. It’s not…
