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When Words Escape Me – Schizoaffective Disorder And Written Communication
TW: Mention of suicidal thoughts If you knew me in high school, you would probably have seen me scribbling in a journal or adding another freewrite filled with metaphors to my binder. My computer is full of short notes, poems, essays, and stories. But at a certain point, they stop. The scrawled pages of my journal go blank. The files on my computer run out. With its onset, schizoaffective disorder stole the words from my mind. Words were more than communication or a hobby for me. Words were how I sorted out my thoughts and emotions and how I figured out who I was and who I wanted to be.…
- Advocacy, Disorganized symptoms, Hallucinations, Medication, Recovery, Schizoaffective Disorder, Schizophrenia
On Speaking Up About Symptoms
We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…
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The Importance of Hope in Recovery
Receiving a mental health diagnosis isn’t the end of your life, it’s just the beginning of a new chapter. But it may be daunting or terrifying. When I was diagnosed with schizoaffective disorder, I had no idea what my future would look like. Would I go to college? Would I have a career? Or would I live out my days in my parents’ home or a residential facility, unable to care for myself? I honestly didn’t know, and I’m not sure anyone else did either. While my mind went spinning into denial, fear, and acceptance that life as I knew it was over, a part of me clung to hope…