-
Life with Schizoaffective Disorder – the Quiet Changes
Schizophrenia is not all hallucinations and delusions. There is a quieter suffering. Here is how the shame and self-doubt impacted my life.
-
If I had a second chance at my first year with schizoaffective disorder
Close your eyes for a moment. Think of a difficult time in your life. What do you feel? Do you feel like you did your best or do you have regrets? Or maybe a combination of both? If you had a second chance and could go back and change the decisions you made or the way you acted, would you? When my mind wanders back to my first year living with schizoaffective disorder, I think I did the best I thought I could. But I don’t think I made all the right choices. If I could go back to standing in 17-year-old me’s worn out converse shoes, there are some…
- Advocacy, Anxiety, Depression, Eating Disorders, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Accepting Mental Illness in Real Life
If someone having visible symptoms of a mental illness makes you uncomfortable, the solution is not for them to stop. Society needs to learn to be accepting of mental illness in more than just theory. And this doesn’t only hold true for mental health. People with illnesses and disabilities of all kinds face this kind of stigma. I’ve been on both sides. I remember sitting on the L train in Chicago one evening with a friend. Across the aisle, a gentleman who had been muttering to himself began to hit himself on his forehead repeatedly. It made me uncomfortable because I didn’t know how to respond. Do I intervene? Would…
- Advocacy, Disorganized symptoms, Hallucinations, Medication, Recovery, Schizoaffective Disorder, Schizophrenia
On Speaking Up About Symptoms
We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…
-
Adapting to life with schizoaffective disorder (part 2) – Stigma
That’s me in the photo – multiple ear piercings, blue streaks in my bangs, looking confident. It was my high school graduation and I had done it. A year earlier, I would never have doubted that I would graduate, but a few weeks before I started my senior year, my world came crashing down around me when I was diagnosed with schizoaffective disorder. I thought my life might be over. But mostly, I was afraid of what others would think and how they would treat me, and I knew my parents were afraid of the stigma I might face as well. Convinced that I was different I fully expected people…
-
Schizophrenia – Taking the power from the word
For a very long time, I lived in a cloud of shame and fear brought on by my diagnosis of schizoaffective disorder. I made my parents promise not to share it with my extended family. For a bit, I even kept my diagnosis from my brother, who was away at college. By the end of the first year with my disorder, less than 20 people knew, including my parents and doctors. I was so afraid of the power of the word schizophrenia. Fighting the fear I was afraid that the word alone would make people see me in a different light. Could it wash away years of friendship? What did…
