- Advocacy, Anxiety, Depression, Eating Disorders, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Accepting Mental Illness in Real Life
If someone having visible symptoms of a mental illness makes you uncomfortable, the solution is not for them to stop. Society needs to learn to be accepting of mental illness in more than just theory. And this doesn’t only hold true for mental health. People with illnesses and disabilities of all kinds face this kind of stigma. I’ve been on both sides. I remember sitting on the L train in Chicago one evening with a friend. Across the aisle, a gentleman who had been muttering to himself began to hit himself on his forehead repeatedly. It made me uncomfortable because I didn’t know how to respond. Do I intervene? Would…
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Negative Symptoms – A Look Inside
What are negative symptoms? Well, they can be difficult to explain. Two days ago, I sat in the passenger seat of the car, sorting through my thoughts. I was irritated, but consciously forced urges to say mean things out of my head. There was nothing worth fighting over. At a certain point, the mean thoughts slowed and stopped appearing. Instead, they were replaced by ordinary things to say like comments on the songs playing and random thoughts. As they unfolded in my mind, I looked them over. But with each one, I ultimately decided they weren’t worth sharing, though there was no anger behind it. So we drove in silence.…
- Advocacy, Disorganized symptoms, Hallucinations, Medication, Recovery, Schizoaffective Disorder, Schizophrenia
On Speaking Up About Symptoms
We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…
- Advocacy, Anxiety, Cognitive Symptoms, Depression, Medication, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
A year in my life with mental illness – 2020
2020 came at us with teeth. But as we rapidly approach the end of the year, which is also my 30th birthday, I’m beginning to reflect on this past year. For the United States and the world as a whole, it’s been a tumultuous year full of some high points, but many lows. Personally, there have been some bold highlights, but also deep lows. My mental health is always something of a struggle, but I was unprepared for what this year would bring. Things don’t always work out like you expect. This year started with a job change that I thought was going to be perfect. And while there have…
- Advocacy, Anxiety, Depression, Eating Disorders, Medication, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Why I share my story and how you can share your story too
The very first time I shared my story at a Crisis Intervention Training (CIT), a man waited quite a while to talk to me after we were done. The rest of the class had returned from their brief break to finish out the end of the last day of the training. He told me that his sister had been diagnosed with schizoaffective disorder. But he said he and his family didn’t really get it because she seemed fine. Now, he said, he understood. He told me he was going to go home and call his sister. Moments like these encapsulate why I share my story. By speaking to those with…
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How I Self-Medicated Without Drugs and Alcohol
I was once asked if I self-medicated after the onset of my mental illness. The answer? Yes, but not with drugs or alcohol. It wasn’t my clarity or control over my mind that bothered me the most when schizoaffective disorder hit me like a bus. I wasn’t ready to deal with those yet. What I mourned the most was the loss of the ease of academics, the ability to eat anything but stay skinny, and some level of innate athletic ability – the things that others could see. I felt robbed. It felt like I was worth less without those things. And since then, they’ve held roles as both ways…
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The Impact of my Illnesses on my Significant Other
Meet James. He’s a hardware and software engineer from the same area of California that I’m from. We met back in high school and didn’t really like each other. But 8 years after I moved to Illinois, we reconnected through Facebook. Now he lives with me in Illinois and we’ve been dating for 3 1/2 years. His support is vital to me, and he regularly supports me through symptoms and setbacks related to my obsessive-compulsive disorder (OCD), post-traumatic stress disorder (PTSD), and schizoaffective disorder. Typically on this blog, you hear my perspective. To give you a fuller idea of the impact my illnesses have on those around me, here is…
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Living with the Pieces of My Shattered Mind
The shadows felt alive. Dark and sharply defined, I could feel them breathe as we walked our dog in the dark evening. The shadows were nonthreatening, but the longer this internal war goes on, the more my world seems to come alive. It began with voices in the distance – a scream, whispers, conversation far off in the distance, always too far to be heard clearly. We turned them up and down in therapy, inspecting from all angles. But the only thing that came of our initial investigation was that I felt that their conversation had something to do with me. At some point in my past, my mind fractured…
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Why we can’t forget about people with schizophrenia
It’s exciting to see so many organizations and individuals coming out to support and shed light upon mental illness. Brave people are standing up and sharing their stories, something that can be very frightening to do. The fight against stigma is gaining support daily. But in our efforts to dispel the myths and stereotypes around mental illness, there are still diseases that are often overlooked or treated differently. When it comes to advocacy, we can’t forget diseases like schizophrenia and schizoaffective disorder. The fear of the word Even within the mental health community, there is a great deal of stigma around disorders involving symptoms of psychosis like schizophrenia. The words…
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Schizoaffective disorder – Would you take it all back if you could?
At this point, I can’t imagine what life would be like without schizoaffective disorder. What is it like to not take medication? How does it feel to have your thoughts mostly organized? What does it feel like to live without cognitive impairment? And what is life like when you’re struggles aren’t projected as something you experience that no one else perceives? Would my life be better without this disease? Despite my ability to function highly, schizoaffective disorder has caused my life to deviate far away from what most others experience. But how has it really impacted me? It’s been my downfall and silent disaster. It’s caused me agony, left me…