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When Words Escape Me – Schizoaffective Disorder And Written Communication
TW: Mention of suicidal thoughts If you knew me in high school, you would probably have seen me scribbling in a journal or adding another freewrite filled with metaphors to my binder. My computer is full of short notes, poems, essays, and stories. But at a certain point, they stop. The scrawled pages of my journal go blank. The files on my computer run out. With its onset, schizoaffective disorder stole the words from my mind. Words were more than communication or a hobby for me. Words were how I sorted out my thoughts and emotions and how I figured out who I was and who I wanted to be.…
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What I didn’t have to give up because of schizoaffective disorder
It’s all gone. That’s what I thought when I received my schizophrenia diagnosis, later updated to schizoaffective disorder. In my head, I watched everything I’d wanted and planned go up in flames. At first, I was resigned to it. But, over a year later, mental health advocacy caught my eye and I took up the chant that a diagnosis on the schizophrenia spectrum is not a death sentence. And, though I stand by that, I think mental health advocacy, at least when it comes to severe mental illness, misses some things. This illness isn’t my fault, but I still felt like, by having it, I had to give certain things…
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A Stereotype, Schizophrenia, and How I Had It All Wrong
Before I was diagnosed with schizophrenia, I believed some of the stereotype. Here's what the stereotype got wrong and how it impacted me.
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Another Year Ending – Reflections on Schizoaffective Disorder and 2021
At the end of the month we’ll hear shouts of “Happy New Year!” On that day, I’ll have another year on this earth officially under my belt. Another year older, another year wiser, another year of struggle and change behind me. Happy birthday to me, you survived. Sometimes I wonder how. This last year was another test (but really, aren’t they all?) Panic disorder had me swapping to the passenger seat of my own car. Schizoaffective disorder introduced me to new individuals and voices. And depression had me thinking of actions that I’ve managed to resist for roughly seven years. Don’t worry, I’ve kept up my streak, but it was…
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To my friend living with psychosis,
Hey, you – you transitioning out of that facility; you sitting at home; you still figuring out your next move; and you who feels like there’s no hope and no one understands. My friend, this letter is for you. My name is Katie, and though I may not have been through the exact same things you have, I get it. I’ve been diagnosed with schizoaffective disorder since I was 17. I’ve taken handfuls of meds, done countless hours of therapy, and lost parts of my life to my disorder. And I’m here to tell you that there is hope for things to get better. Life might feel impossible right now.…
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What Do My Hallucinations From Schizoaffective Disorder Feel Like?
After 13 years of living with schizoaffective disorder, hallucinations are a somewhat normal part of my life. They are neither constant nor always terrifying, but they do occur even with my treatment regimen. Everyone’s experiences are different, but here’s a look into what my visual, auditory, and tactile hallucinations are like. Do you know when you’re hallucinating? This is called insight, but it’s not universal to all with psychosis, and it also may come and go. For me, sometimes it’s easy to brush a hallucination off as just a symptom. But at other times there’s a tidal wave-like rush of emotions and my fight or flight instinct has me ready…
- Anxiety, Depression, Obsessive Compulsive Disorder, Perfectionism, PTSD, Recovery, Schizoaffective Disorder
A New Home – Real Estate, Mental Illness, and a Major Milestone
I’ve been having trouble writing lately. Well, I’ve been having trouble keeping up with a lot of things. My boyfriend and I are looking at buying a home. And even though it’s a good thing and we’re thrilled and grateful to have this opportunity, sometimes good things are still incredibly stressful. My schizoaffective disorder, depression, obsessive-compulsive disorder (OCD), post-traumatic stress disorder (PTSD), severe anxiety surrounding perfectionism, and newly diagnosed panic disorder are always a part of my daily life, but right now the stress amplifies all of them. My head feels busy – like a hive full of bees. Thoughts buzz and shift, but there is not enough room for…
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The Ghosts – An Inside Look at One of My Hallucinations
I call them the ghosts. They aren’t really spirits, but I can only catch a glimpse of them before they’re gone. Dressed in soft-looking shirts in shades of white and ivory, they carry out everyday tasks. Their presence is neutral – neither threatening nor overly hopeful. Calm and content, they go about their business with only a passing glance thrown my way. I know they are not real, but I feel like I am seeing them for a reason. And I am dying to know what that is. After seeing the third one, I began to notice the pattern. She stood indoors near the side door of our apartment building.…
- Anxiety, Depression, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Mental Illness Stole my Identity – Stories from Recovery
I never thought that I tied my identity to my mental illnesses. I’m more than schizoaffective disorder. Post-traumatic stress disorder (PTSD) is just something I live with. Obsessive-compulsive disorder (OCD) doesn’t define me. And depression and anxiety are a battle, not my identity. I convinced myself that I am my own true self. But after 13 years of therapy, I’m realizing that I have no idea who I am at all. And it’s nearly ground my recovery to a halt. I preached that I am not my illnesses. I am a person, not a diagnosis. But as we dig into the deepest darkest parts of my mind, I’m realizing that…
- Advocacy, Anxiety, Depression, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
The Right Term – Sensitive, Supportive, and Entirely Personal
Trigger Warning: Talk of Rape/Sexual Assault and Suicide In our efforts to be respectful, caring, and politically correct, we sometimes miss our own biases creeping in, though in a different way. We forget that not everyone thinks the same way, whether you share diagnoses or experiences or not. And in the process, we may be hindering the recovery and growth of others. From organizations and media, we learn the “appropriate” terms and ways to talk to people. But have you ever stopped and wondered if that’s what the individuals want? Person-first vs. identity-first language I am a person with schizoaffective disorder. Advocacy told me that I am not a schizoaffective,…
