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Living with the Pieces of My Shattered Mind
The shadows felt alive. Dark and sharply defined, I could feel them breathe as we walked our dog in the dark evening. The shadows were nonthreatening, but the longer this internal war goes on, the more my world seems to come alive. It began with voices in the distance – a scream, whispers, conversation far off in the distance, always too far to be heard clearly. We turned them up and down in therapy, inspecting from all angles. But the only thing that came of our initial investigation was that I felt that their conversation had something to do with me. At some point in my past, my mind fractured…
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Depression: silently coming apart at the seams
Trigger Warning: Mention of self-harm and suicidal ideation In high school, I reinvented myself. In junior high I hid my extreme shyness and inner turmoil behind an obsession with horses. But as I transitioned from junior high to high school, I decided that I didn’t want to be “that weird girl” anymore. I had been involved in theater since I was 12 and simply utilized what I had learned. I wasn’t confident, but I could fake it. I’ve always been timid, but I had wanted to be a leader. And I wasn’t happy, but I could pretend I was. The result was a new identity – a fearless leader, alternative…
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My Experience with Mental Illness in the Workplace
In college, I interviewed for a position in the lab of a professor at my university. I eagerly explained that part of why I was interested in his work and the role was because of my personal experience with schizoaffective disorder. He gently advised me that my diagnosis was something I should keep closer to my chest in job interviews. At the time, I was almost offended. I’m out here trying to break stigma. How can I do that if I’m not open about it? But, over the years, I’ve come to understand why he said that. At this point in my life, I’ve been through several jobs in some…
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Why we can’t forget about people with schizophrenia
It’s exciting to see so many organizations and individuals coming out to support and shed light upon mental illness. Brave people are standing up and sharing their stories, something that can be very frightening to do. The fight against stigma is gaining support daily. But in our efforts to dispel the myths and stereotypes around mental illness, there are still diseases that are often overlooked or treated differently. When it comes to advocacy, we can’t forget diseases like schizophrenia and schizoaffective disorder. The fear of the word Even within the mental health community, there is a great deal of stigma around disorders involving symptoms of psychosis like schizophrenia. The words…
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Schizoaffective disorder – Would you take it all back if you could?
At this point, I can’t imagine what life would be like without schizoaffective disorder. What is it like to not take medication? How does it feel to have your thoughts mostly organized? What does it feel like to live without cognitive impairment? And what is life like when you’re struggles aren’t projected as something you experience that no one else perceives? Would my life be better without this disease? Despite my ability to function highly, schizoaffective disorder has caused my life to deviate far away from what most others experience. But how has it really impacted me? It’s been my downfall and silent disaster. It’s caused me agony, left me…
- A Day in the Life, Hallucinations, Obsessive Compulsive Disorder, Schizoaffective Disorder, Schizophrenia
A Day in My Life with Schizoaffective disorder – Moving Day
It’s moving day – well, day 2. We spent the night in our new apartment. It’s still skeletal when it comes to furnishings. Bags and boxes litter the rooms, stacked on the furniture and the floor. Despite all of that, I already feel at home. I lean towards the mirror as I put on my makeup. It might seem strange to some that I would wear makeup when I’ll be spending my day lifting and carting around boxes, but, for me, makeup is a form of self-care. I don’t think I look awful without it, but I feel more secure when I’ve spent time taking care of myself. It’s not…
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When your child is diagnosed with a schizophrenia spectrum disorder
It’s understandable if your emotions are on high and if fear is flooding through your veins. Schizophrenia and schizoaffective disorder are scary words. You might be wondering what this means for your child’s life. Will they be able to live independently? Will they be happy? As much as I wish that I could, I can’t answer those questions for you, but here’s what I know. Not only has your child’s life changed forever, but yours has too. Whether your child is young or an adult, it’s going to be a complicated road full of obstacles in treatment, education, work, and even just daily life, but no matter how bleak the…
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The Secret to My Success with Schizoaffective Disorder
I’m often asked how I’ve done so well with schizoaffective disorder. I’ve graduated from a high level university, held down jobs, have never stopped taking my pills, and have never been hospitalized in the 12 years that I’ve been living with schizoaffective disorder. So how did I do it? What’s the secret to my success? Well, it’s a handful of different things, but not all of them were healthy. The day of my diagnosis, I told my mom that I would not let schizoaffective disorder define me. While I did, and still do, firmly believe that I am more than just my illness, this thought process contained a layer of…
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Tangled Emotions
Mental illness is cruel. It can take your ability to reason right out of your grasp. It can reach into your head and twist your thoughts until they’re so tangled up you don’t know what’s happening. Mental illness can steal your hope, push every button you have, and fill your head with so many different emotions that you don’t know what you’re feeling. I thought I was keeping up with my thoughts and feelings, but mental illness fed me anxiety, fear, and paranoia until I didn’t know what I was feeling anymore. It started with my ex moving into my building and my post-traumatic stress disorder (PTSD) soaring to new…
- Anxiety, Depression, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
What do I want when I need support?
What do I want when I’m not okay? How can you help me when I’m coming unraveled on the floor? What are you expected to do when my nerves are on fire and I can’t handle it? What are you supposed to say when I’m telling you I’m seeing something that you can’t see? How are you supposed to know what to do? Well, you aren’t. I spent years wanting someone to just know what I wanted and how to help me without me having to explain. But over the years I realized that I couldn’t expect others to know. Why would you know? Why would you know how to…