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Dear Mental Health Professionals – You Need People With Lived Experience On Your Team. Here’s Why.
Dear researchers, clinicians, and other professionals who work with people who experience psychosis, My name is Katie and I have been living with schizoaffective disorder since 2008. And you need people like me. I don’t mean as patients or research subjects or consumers of any kind. I mean as a fellow professional. Because my lived experience, and that of others, can change the way we look at and treat those living with psychosis. I can give you insights you can’t find anywhere but the minds of those living with psychosis. I’ve been a psychosis advocate for years. I’ve worked independently, as an ambassador for NAMI Chicago, and, most recently, as…
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A Stereotype, Schizophrenia, and How I Had It All Wrong
Before I was diagnosed with schizophrenia, I believed some of the stereotype. Here's what the stereotype got wrong and how it impacted me.
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A Young Adult gets a Schizophrenia Diagnosis- My Experience and How to Change It
Imagine, for a moment, a young adult, sitting on the couch in a psychiatrist’s office, shifting anxiously as they wait to hear the answer to their question. The doctor sits in her chair, red nails pressed tip to tip as she puts her hands together. Hesitantly, she gives the young adult the answer they dreaded – “It’s looking to be schizophrenia.” In your mind, who is this young adult? Yourself? Your child or sibling? Or perhaps a stranger? How did you picture them reacting to this news? My guess is, not well. And that would not be surprising. When I received my initial schizophrenia diagnosis, I thought my life was…
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How My Brain Works After Schizoaffective Disorder
At 17, I was a problem solver. I was an academic thinker who thrived on logic puzzles and complex literature. Creativity was a second language – drawing, acting, photography, and stream-of-consciousness free writes wrapped up in metaphors. Whether or not I was any good at them didn’t matter; the ideas and motivation just flowed naturally. Outside of undiagnosed depression and obsessive-compulsive disorder (OCD), my brain was efficient and extremely sharp. Each of my mental illnesses has had its impact on my mental functioning, but with the onset of schizoaffective disorder, things took a sharp turn. Though my passions and other areas of interest remain the same, my brain works differently…
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5 Of The Best Things Anyone Has Ever Done For Me And My Schizoaffective Disorder
It’s normal to feel lost when it comes to how to help someone with schizoaffective disorder or schizophrenia. Even if you’re the person living with it, you may not always know what to ask for or even how to ask. But that’s okay. Unless you’ve been through this before, there’s no reason you would know what to do. And, while those of us living with psychosis may have some of the same or similar symptoms, these illnesses are highly personal and what works for one person may not work for another. But to help you come up with things that will help you or your loved one, in no particular…
- Advocacy, Disorganized symptoms, Hallucinations, Medication, Recovery, Schizoaffective Disorder, Schizophrenia
On Speaking Up About Symptoms
We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…
