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Dear Schizoaffective Disorder – Letters to My Illness
Dear schizoaffective disorder, You are the worst roommate I have ever had. You took up residency in my brain, but refuse to pay rent. I know there’s no evicting you. And I know you’ll probably never play by my rules, but we need to find a way to live together. Dear schizoaffective disorder, You’re a bully. You lie in wait until you see my edges fraying. Then you come at me, claws out. There is no valor in preying on the weak. And I can barely imagine the suffering of the people without effective treatment on whom you prey. Sometimes I fight back. But sometimes I don’t have the energy…
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Life with Schizoaffective Disorder – the Quiet Changes
Schizophrenia is not all hallucinations and delusions. There is a quieter suffering. Here is how the shame and self-doubt impacted my life.
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Let’s skip to the part of my life inside schizoaffective disorder
Trigger Warning: Mention of self-harm and suicidal thoughts. Let’s skip to the part where we’re close friends – past the pleasantries and smiling faces. We’re in high school, sitting on the floor of my living room softly speaking about the realities of our lives. I would tell you about how I felt like I didn’t belong anywhere. And that I felt safest with horses and my closest friends, but that neither had any power over my desire to self-harm or the way my thoughts wandered around the idea of taking my life, dragging toes, but always leaving the door open. Let’s skip to the part when things first turned. At…
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Why My Recovery from Symptoms of Mental Illness Scares Me
Recovery from mental illness is complicated. Figuring out what recovery will realistically look like is complicated. The actual process of recovery is complicated. And figuring out how you feel about your recovery can be more complicated than others may think. For me, recovery is a lifelong process. Due to the nature of my illnesses, some, if not all, will be with me my entire life. What I’m chasing is stability. And right now, I’m fighting to break free from severe symptoms. It might sound a little ridiculous, but, at this stage, my recovery is full of mixed emotions. I’m excited, but also terrified. In the beginning, things looked bleak. Every…
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Social Anxiety – An Open Letter
Dear friend, You are not alone in your social anxiety. I see your struggle behind that smile that fools so many. I see how badly you wish it would stop. Maybe you wonder what’s wrong with you – things that are easy for others might feel panic inducing to you. Social anxiety comes in countless sizes, shapes, and colors, but whatever version resides in your chest, I see you, I feel for you, and I am right there with you. As a child, I was painfully shy. Chances are, if I didn’t know you, I wouldn’t talk to you. Tears would crowd my eyes as I stood in a room…
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What facing my trauma really looks like
Trigger Warning: Mention of sexual assault/rape and suicidal ideation Don’t let him rule your life. Everyone who offered those words meant it in support. I told myself I could do it. I tried. But when the man who sexually assaulted you moves into your apartment building, it’s going to have an impact. The trauma became inescapable. It felt like an invasion of privacy. I felt safe in our location. It was a fair distance from where I last knew of that he lived as well as being away from where he and I lived together. For me this was a new city, new space, new outlook on life. The building…
- Advocacy, Disorganized symptoms, Hallucinations, Medication, Recovery, Schizoaffective Disorder, Schizophrenia
On Speaking Up About Symptoms
We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…
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My Experience with Mental Illness in the Workplace
In college, I interviewed for a position in the lab of a professor at my university. I eagerly explained that part of why I was interested in his work and the role was because of my personal experience with schizoaffective disorder. He gently advised me that my diagnosis was something I should keep closer to my chest in job interviews. At the time, I was almost offended. I’m out here trying to break stigma. How can I do that if I’m not open about it? But, over the years, I’ve come to understand why he said that. At this point in my life, I’ve been through several jobs in some…
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Tangled Emotions
Mental illness is cruel. It can take your ability to reason right out of your grasp. It can reach into your head and twist your thoughts until they’re so tangled up you don’t know what’s happening. Mental illness can steal your hope, push every button you have, and fill your head with so many different emotions that you don’t know what you’re feeling. I thought I was keeping up with my thoughts and feelings, but mental illness fed me anxiety, fear, and paranoia until I didn’t know what I was feeling anymore. It started with my ex moving into my building and my post-traumatic stress disorder (PTSD) soaring to new…
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When All You Can Do Is Try
Receiving a diagnosis of schizophrenia or schizoaffective disorder is life changing. It can turn your entire world upside down. I would love to tell you that I’ve always handled my diagnosis and living with schizoaffective disorder with dignity and grace, but that’s just not the case. Despite my ability to articulate what I’ve been through, I don’t have myself entirely together all the time. I would like to believe that I do, but I don’t. I’ve been bitter, I’ve been angry, and I’ve been in denial. It’s feelings not unlike that which some people with diagnoses of other chronic illnesses or terminal illnesses go through. I used to try to…
