• Recovery,  Schizoaffective Disorder,  Schizophrenia

    When Words Escape Me – Schizoaffective Disorder And Written Communication

    TW: Mention of suicidal thoughts If you knew me in high school, you would probably have seen me scribbling in a journal or adding another freewrite filled with metaphors to my binder. My computer is full of short notes, poems, essays, and stories. But at a certain point, they stop. The scrawled pages of my journal go blank. The files on my computer run out. With its onset, schizoaffective disorder stole the words from my mind. Words were more than communication or a hobby for me. Words were how I sorted out my thoughts and emotions and how I figured out who I was and who I wanted to be.…

  • Schizoaffective Disorder,  Schizophrenia

    How My Brain Works After Schizoaffective Disorder

    At 17, I was a problem solver. I was an academic thinker who thrived on logic puzzles and complex literature. Creativity was a second language – drawing, acting, photography, and stream-of-consciousness free writes wrapped up in metaphors. Whether or not I was any good at them didn’t matter; the ideas and motivation just flowed naturally. Outside of undiagnosed depression and obsessive-compulsive disorder (OCD), my brain was efficient and extremely sharp. Each of my mental illnesses has had its impact on my mental functioning, but with the onset of schizoaffective disorder, things took a sharp turn. Though my passions and other areas of interest remain the same, my brain works differently…

  • Advocacy,  Schizoaffective Disorder,  Schizophrenia

    5 Of The Best Things Anyone Has Ever Done For Me And My Schizoaffective Disorder

    It’s normal to feel lost when it comes to how to help someone with schizoaffective disorder or schizophrenia. Even if you’re the person living with it, you may not always know what to ask for or even how to ask. But that’s okay. Unless you’ve been through this before, there’s no reason you would know what to do. And, while those of us living with psychosis may have some of the same or similar symptoms, these illnesses are highly personal and what works for one person may not work for another. But to help you come up with things that will help you or your loved one, in no particular…

  • Hallucinations,  Recovery,  Schizoaffective Disorder

    Living with the Pieces of My Shattered Mind

    The shadows felt alive. Dark and sharply defined, I could feel them breathe as we walked our dog in the dark evening. The shadows were nonthreatening, but the longer this internal war goes on, the more my world seems to come alive. It began with voices in the distance – a scream, whispers, conversation far off in the distance, always too far to be heard clearly. We turned them up and down in therapy, inspecting from all angles. But the only thing that came of our initial investigation was that I felt that their conversation had something to do with me. At some point in my past, my mind fractured…

  • Disorganized symptoms,  Schizoaffective Disorder,  Schizophrenia

    What My Disorganized Thoughts Feel Like

    I wake up every morning not knowing if my thoughts will stay in place today. When talking with others, my thoughts can become derailed and wander off to other related subjects. I can be perfectly aware of where the conversation is, but my mind takes me by the hand and leads me on paths that gently begin to deviate from the topic. In high school, my friends became accustomed to me piping up when the conversation headed my way, announcing, “a really weird train of thought led me to…” after making my remarks, we would retrace the steps from the original topic to my latest comment. It’s not that I’m…

  • Cognitive Symptoms,  Disorganized symptoms,  Hallucinations,  Recovery,  Schizoaffective Disorder

    A letter to myself on the day of my diagnosis

    8/5/2020 I know your mind is spinning right now. It’s August 5, 2008 and the words, “it’s looking to be schizophrenia,” are turning over and over in your head. You won’t ever forget the tone in her voice when she said it or her red nails. This day feels like the end of everything you’ve ever known, but it’s actually just the beginning of something entirely new. Your diagnosis will ultimately be updated to schizoaffective disorder, and you will struggle at first – with understanding your disorder, with the symptoms, the medication, and also the constant anxiety of being found out. But contrary to what you believe, those close to you will…

  • A Day in the Life,  Disorganized symptoms,  Hallucinations,  Schizoaffective Disorder

    A Day in My Life With Schizoaffective Disorder – When Symptoms Flare

    Mental illnesses affect everyone differently. When I experience symptoms, to outsiders it may look like nothing is wrong. Here’s a glimpse behind the curtain of what a recent flare up was like for me. I pushed my post-traumatic stress disorder yesterday. I went to a place that I usually avoid. I’m proud of myself for that, but I’m paying a price. I had flashbacks that evening, and symptoms of psychosis crept in, the tide rising on me today. I take my time getting ready this morning. In general, when I’m stressed or anxious, I feel better if I’ve put effort into my appearance; it’s a form of self-care for me.…

  • Depression,  Medication,  Recovery,  Schizoaffective Disorder,  Schizophrenia

    Life as a high functioning person with schizoaffective disorder

    There are a few different ways to define what high functioning means for someone with schizophrenia – the ability to work full-time or function as a stay-at-home caregiver or as a full-time student, good interpersonal skills and relationships, and just generally being able to function in society the majority of the time. Throughout the course of my life with schizoaffective disorder, I have always been considered high functioning. But high functioning doesn’t mean my life is normal or even symptom-free. There still may be symptoms Residual symptoms are common in people with schizophrenia and schizoaffective disorder even with medication and can occur frequently. For me, this occurs as disorganized thoughts…