• Recovery,  Schizoaffective Disorder,  Schizophrenia

    If I had a second chance at my first year with schizoaffective disorder

    Close your eyes for a moment. Think of a difficult time in your life. What do you feel? Do you feel like you did your best or do you have regrets? Or maybe a combination of both? If you had a second chance and could go back and change the decisions you made or the way you acted, would you? When my mind wanders back to my first year living with schizoaffective disorder, I think I did the best I thought I could. But I don’t think I made all the right choices. If I could go back to standing in 17-year-old me’s worn out converse shoes, there are some…

  • Advocacy,  Anxiety,  Depression,  Obsessive Compulsive Disorder,  PTSD,  Recovery,  Schizoaffective Disorder,  Schizophrenia

    Help, Hypocrisy, and What it Took for Me To Ask

    I shocked my psychiatrist recently. I have never seen her more surprised than when I asked, “do you think a third session every week would be helpful?” It took her a moment to process. “yes,” she said, “I think it would.” Today she explained her surprise. In the nearly 8 years she’s been working with me, I’ve done just about everything to avoid asking for help. And suddenly, I am determined to get it. Let me give you some background My childhood and teen years were spent trying to convince myself that my obsessive-compulsive disorder was quirkiness and that I was being overdramatic by thinking I was suffering from depression.…

  • Advocacy,  Disorganized symptoms,  Hallucinations,  Medication,  Recovery,  Schizoaffective Disorder,  Schizophrenia

    On Speaking Up About Symptoms

    We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…

  • Schizoaffective Disorder,  Schizophrenia

    The Secret to My Success with Schizoaffective Disorder

    I’m often asked how I’ve done so well with schizoaffective disorder. I’ve graduated from a high level university, held down jobs, have never stopped taking my pills, and have never been hospitalized in the 12 years that I’ve been living with schizoaffective disorder. So how did I do it? What’s the secret to my success? Well, it’s a handful of different things, but not all of them were healthy. The day of my diagnosis, I told my mom that I would not let schizoaffective disorder define me. While I did, and still do, firmly believe that I am more than just my illness, this thought process contained a layer of…

  • Adapting to life with schizoaffective disorder,  Medication,  Recovery,  Schizoaffective Disorder,  Schizophrenia

    Adapting to life with schizoaffective disorder (part 1) – Self-acceptance

    “It’s looking to be schizophrenia.” My heart skipped a beat when my doctor said those words. Part of me felt calm because it confirmed what I had suspected, but in the car I came apart. I didn’t know any success stories of people who went on to live perfectly normal lives. All I knew were stereotypes and stories with poor outcomes. I swore to myself that that would not happen to me. The first year The first year of my diagnosis was a mixture of struggle and denial. I was highly motivated to take my medication because I knew it was key in reaching and maintaining stability. I hated the…