-
When Words Escape Me – Schizoaffective Disorder And Written Communication
TW: Mention of suicidal thoughts If you knew me in high school, you would probably have seen me scribbling in a journal or adding another freewrite filled with metaphors to my binder. My computer is full of short notes, poems, essays, and stories. But at a certain point, they stop. The scrawled pages of my journal go blank. The files on my computer run out. With its onset, schizoaffective disorder stole the words from my mind. Words were more than communication or a hobby for me. Words were how I sorted out my thoughts and emotions and how I figured out who I was and who I wanted to be.…
-
How She Helped Me – Small Things, Big Impact
To the coworker who helped me when I had a hallucination at work, thank you. When I told you I had a weird question and I didn’t know how to ask, you gave me your full attention. No discomfort, no judgement, you listened. You listened to me say that I had been sitting at my desk working and heard the sound of scratching from the inside of the server room door and I didn’t know if it was real or all in my head. Only a select few people in the office know that I have schizoaffective disorder, including you. But I had never approached anyone in the office with…
-
Social Skills, Schizoaffective Disorder, and Accepting My Needs
“Please.” I twist the word in my mind, stretching it, arcing it, and wringing out every drop of meaning. I never thought I would be learning social skills at 31. I turn “please” and the other words in that sentence of my coworker’s email over and over in my head, playing them in different tones of voice, picturing what it might look like in person. Would her face look like it does when I know she’s happy? And what if I can’t decide what feeling I think is behind it? I can’t always peer inside your mind the way other people can. Though not due to lack of empathy, identifying…
-
Dear Schizoaffective Disorder – Letters to My Illness
Dear schizoaffective disorder, You are the worst roommate I have ever had. You took up residency in my brain, but refuse to pay rent. I know there’s no evicting you. And I know you’ll probably never play by my rules, but we need to find a way to live together. Dear schizoaffective disorder, You’re a bully. You lie in wait until you see my edges fraying. Then you come at me, claws out. There is no valor in preying on the weak. And I can barely imagine the suffering of the people without effective treatment on whom you prey. Sometimes I fight back. But sometimes I don’t have the energy…
-
Let’s skip to the part of my life inside schizoaffective disorder
Trigger Warning: Mention of self-harm and suicidal thoughts. Let’s skip to the part where we’re close friends – past the pleasantries and smiling faces. We’re in high school, sitting on the floor of my living room softly speaking about the realities of our lives. I would tell you about how I felt like I didn’t belong anywhere. And that I felt safest with horses and my closest friends, but that neither had any power over my desire to self-harm or the way my thoughts wandered around the idea of taking my life, dragging toes, but always leaving the door open. Let’s skip to the part when things first turned. At…
-
How My Brain Works After Schizoaffective Disorder
At 17, I was a problem solver. I was an academic thinker who thrived on logic puzzles and complex literature. Creativity was a second language – drawing, acting, photography, and stream-of-consciousness free writes wrapped up in metaphors. Whether or not I was any good at them didn’t matter; the ideas and motivation just flowed naturally. Outside of undiagnosed depression and obsessive-compulsive disorder (OCD), my brain was efficient and extremely sharp. Each of my mental illnesses has had its impact on my mental functioning, but with the onset of schizoaffective disorder, things took a sharp turn. Though my passions and other areas of interest remain the same, my brain works differently…
- Advocacy, Anxiety, Depression, Eating Disorders, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Why Mental Health Education Needs to Begin Before a Career
When I started speaking publicly about schizoaffective disorder in college, it was an education on, “look what people like me can achieve despite all of this” Now, when I speak for classes and community presentations, it’s, “look what it’s really like to live with this” And when I speak for law enforcement and correctional officers, it’s, “look at how I go through all of this, but I’m still just like you.” Same life story, different goal. I rewrote my talk again in anticipation of speaking to the Chicago Police Department for the second time. I began speaking publicly as a junior in college and was both terrified and excited at…
-
The Darker Side of Perfectionism
As I scroll social media on my phone, I see it all the time – “Love yourself!” “Self-care is not selfish!” Nobody’s Perfect!” To me, these messages are for others. Not because I’m against them in any way. Rather, it’s because I don’t feel capable of applying those things to myself. I want to love myself the way I am; I really do. And I create plans for better-self care, but can’t follow through. I don’t want to be perfect. But, according to my brain, I have no other option. I’m a perfectionist, but not the kind that strives for excellence and feels proud when they achieve it. No, the…
- Advocacy, Disorganized symptoms, Hallucinations, Medication, Recovery, Schizoaffective Disorder, Schizophrenia
On Speaking Up About Symptoms
We were still trying to get my medication right when it happened. Home alone, getting ready for the day, I heard a man snicker at me from the back corner of my bedroom. A chill ran through me like an electric shock. My first thought – No. No, this can’t be happening. Fear caught me in it’s grasp. I needed this to go away so I could go back to my normal life. Motivated by a mixture of fear, denial, and trust, I saw speaking up as my only way out. I don’t remember how I told my doctor about my first hallucination. It might have been in a voicemail…
-
Why we can’t forget about people with schizophrenia
It’s exciting to see so many organizations and individuals coming out to support and shed light upon mental illness. Brave people are standing up and sharing their stories, something that can be very frightening to do. The fight against stigma is gaining support daily. But in our efforts to dispel the myths and stereotypes around mental illness, there are still diseases that are often overlooked or treated differently. When it comes to advocacy, we can’t forget diseases like schizophrenia and schizoaffective disorder. The fear of the word Even within the mental health community, there is a great deal of stigma around disorders involving symptoms of psychosis like schizophrenia. The words…