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When your child is diagnosed with a schizophrenia spectrum disorder
It’s understandable if your emotions are on high and if fear is flooding through your veins. Schizophrenia and schizoaffective disorder are scary words. You might be wondering what this means for your child’s life. Will they be able to live independently? Will they be happy? As much as I wish that I could, I can’t answer those questions for you, but here’s what I know. Not only has your child’s life changed forever, but yours has too. Whether your child is young or an adult, it’s going to be a complicated road full of obstacles in treatment, education, work, and even just daily life, but no matter how bleak the…
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A letter to myself on the day of my diagnosis
8/5/2020 I know your mind is spinning right now. It’s August 5, 2008 and the words, “it’s looking to be schizophrenia,” are turning over and over in your head. You won’t ever forget the tone in her voice when she said it or her red nails. This day feels like the end of everything you’ve ever known, but it’s actually just the beginning of something entirely new. Your diagnosis will ultimately be updated to schizoaffective disorder, and you will struggle at first – with understanding your disorder, with the symptoms, the medication, and also the constant anxiety of being found out. But contrary to what you believe, those close to you will…
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A Day in My Life With Schizoaffective Disorder – When Symptoms Flare
Mental illnesses affect everyone differently. When I experience symptoms, to outsiders it may look like nothing is wrong. Here’s a glimpse behind the curtain of what a recent flare up was like for me. I pushed my post-traumatic stress disorder yesterday. I went to a place that I usually avoid. I’m proud of myself for that, but I’m paying a price. I had flashbacks that evening, and symptoms of psychosis crept in, the tide rising on me today. I take my time getting ready this morning. In general, when I’m stressed or anxious, I feel better if I’ve put effort into my appearance; it’s a form of self-care for me.…
- Adapting to life with schizoaffective disorder, Cognitive Symptoms, Recovery, Schizoaffective Disorder, Schizophrenia
Adapting to life with schizoaffective disorder (part 4) – cognitive issues
In the beginning of my senior year of high school, I found myself sitting at my desk in AP Calculus staring at the result of my test. D. How did this happen? I studied harder. C-. I broke out the flash cards, had friends help me study, but I could not do it. It felt like it didn’t matter what I did, I couldn’t reliably remember the formulas. For someone who was used to straight A’s, this was like a blow to the gut. No one had told me that schizophrenia and schizoaffective disorder came with cognitive deficits. Before then, academics had always come easily to me. At the time…
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Suppressed Feelings and Psychosis
My doctor once told me that I experience my feelings visually. By this, she meant the visual hallucinations I was experiencing at the time were manifestations of the feelings that I was either suppressing or struggling to resolve. But it’s not just visual hallucinations. For several weeks I’ve been experiencing recurring auditory hallucinations. During therapy my doctor again pointed out that these hallucinations are my feelings come to life. It’s not always obvious what they mean though. And there are some for which I have no explanation. Or maybe there’s an explanation and I just have yet to find it. There are others with psychosis who use the meanings behind…
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The Importance of Hope in Recovery
Receiving a mental health diagnosis isn’t the end of your life, it’s just the beginning of a new chapter. But it may be daunting or terrifying. When I was diagnosed with schizoaffective disorder, I had no idea what my future would look like. Would I go to college? Would I have a career? Or would I live out my days in my parents’ home or a residential facility, unable to care for myself? I honestly didn’t know, and I’m not sure anyone else did either. While my mind went spinning into denial, fear, and acceptance that life as I knew it was over, a part of me clung to hope…
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Schizophrenia and Schizoaffective Disorder – How they’re alike, how they’re different, and what it felt like to get each diagnosis
During my mental health journey, I originally received a schizophrenia diagnosis It sounds strange, but I was a little excited when I received the schizophrenia diagnosis. Not because I wanted to have schizophrenia, but because now I had a reason for why these things were happening to me. I had documented treatment methods. And it was something I could research and learn more about. That was something that was very important for me. Possessing knowledge about it made me feel like I had more control at a time when my world was spinning out of control. The diagnosis also crushed me. At that point, all I really knew was the…
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When All You Can Do Is Try
Receiving a diagnosis of schizophrenia or schizoaffective disorder is life changing. It can turn your entire world upside down. I would love to tell you that I’ve always handled my diagnosis and living with schizoaffective disorder with dignity and grace, but that’s just not the case. Despite my ability to articulate what I’ve been through, I don’t have myself entirely together all the time. I would like to believe that I do, but I don’t. I’ve been bitter, I’ve been angry, and I’ve been in denial. It’s feelings not unlike that which some people with diagnoses of other chronic illnesses or terminal illnesses go through. I used to try to…
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Supporting a loved one who has been diagnosed with schizophrenia
That moment where you hear the words “schizophrenia.” Heart wrenching, gut turning news. What do you do? How do you help someone fight such a complex illness? What’s going to happen to them? And what is your own life going to be like now? In no way do I have all the answers, and this is by no means an exhaustive list, but here are a few things you can do to help a loved one who has been diagnosed with schizophrenia or schizoaffective disorder. Educate yourself Schizophrenia is a complex illness that affects both the brain and mental health. Medication for schizophrenia can also be confusing. One of the…
- Anxiety, Depression, Eating Disorders, Medication, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
Preparedness for people with mental illnesses
It can be hard to feel prepared for anything when you’ve got a mental health disorder. Below is a list of things that I’ve done to prepare myself for events ranging from forgetting the details of my medications to the possibility of being unable to make decisions for myself. Keep a list of medications with important personal information I take many medications for both mental and physical issues daily, but it was hard to keep track of them. To make that easier, I started carrying a list with me in my wallet. This way, when doctors asked about my medication, I could just give them the list. It turned out…