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When your child is diagnosed with a schizophrenia spectrum disorder
It’s understandable if your emotions are on high and if fear is flooding through your veins. Schizophrenia and schizoaffective disorder are scary words. You might be wondering what this means for your child’s life. Will they be able to live independently? Will they be happy? As much as I wish that I could, I can’t answer those questions for you, but here’s what I know. Not only has your child’s life changed forever, but yours has too. Whether your child is young or an adult, it’s going to be a complicated road full of obstacles in treatment, education, work, and even just daily life, but no matter how bleak the…
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The Secret to My Success with Schizoaffective Disorder
I’m often asked how I’ve done so well with schizoaffective disorder. I’ve graduated from a high level university, held down jobs, have never stopped taking my pills, and have never been hospitalized in the 12 years that I’ve been living with schizoaffective disorder. So how did I do it? What’s the secret to my success? Well, it’s a handful of different things, but not all of them were healthy. The day of my diagnosis, I told my mom that I would not let schizoaffective disorder define me. While I did, and still do, firmly believe that I am more than just my illness, this thought process contained a layer of…
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Tangled Emotions
Mental illness is cruel. It can take your ability to reason right out of your grasp. It can reach into your head and twist your thoughts until they’re so tangled up you don’t know what’s happening. Mental illness can steal your hope, push every button you have, and fill your head with so many different emotions that you don’t know what you’re feeling. I thought I was keeping up with my thoughts and feelings, but mental illness fed me anxiety, fear, and paranoia until I didn’t know what I was feeling anymore. It started with my ex moving into my building and my post-traumatic stress disorder (PTSD) soaring to new…
- Anxiety, Depression, Obsessive Compulsive Disorder, PTSD, Recovery, Schizoaffective Disorder, Schizophrenia
What do I want when I need support?
What do I want when I’m not okay? How can you help me when I’m coming unraveled on the floor? What are you expected to do when my nerves are on fire and I can’t handle it? What are you supposed to say when I’m telling you I’m seeing something that you can’t see? How are you supposed to know what to do? Well, you aren’t. I spent years wanting someone to just know what I wanted and how to help me without me having to explain. But over the years I realized that I couldn’t expect others to know. Why would you know? Why would you know how to…
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A letter to myself on the day of my diagnosis
8/5/2020 I know your mind is spinning right now. It’s August 5, 2008 and the words, “it’s looking to be schizophrenia,” are turning over and over in your head. You won’t ever forget the tone in her voice when she said it or her red nails. This day feels like the end of everything you’ve ever known, but it’s actually just the beginning of something entirely new. Your diagnosis will ultimately be updated to schizoaffective disorder, and you will struggle at first – with understanding your disorder, with the symptoms, the medication, and also the constant anxiety of being found out. But contrary to what you believe, those close to you will…
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A Day in My Life With Schizoaffective Disorder – When Symptoms Flare
Mental illnesses affect everyone differently. When I experience symptoms, to outsiders it may look like nothing is wrong. Here’s a glimpse behind the curtain of what a recent flare up was like for me. I pushed my post-traumatic stress disorder yesterday. I went to a place that I usually avoid. I’m proud of myself for that, but I’m paying a price. I had flashbacks that evening, and symptoms of psychosis crept in, the tide rising on me today. I take my time getting ready this morning. In general, when I’m stressed or anxious, I feel better if I’ve put effort into my appearance; it’s a form of self-care for me.…